A Coventry charity set up to
help victims of brain haemorrhages is hoping to establish itself as
the hub of support for people afflicted by the unusual condition.
James Hennessy has come a long
way since standing on a street corner with collecting tins to raise
money for research into subarachnoid haemorrhages.
The haemorrhage is a leakage
of blood over the surface of the brain, from a major blood vessel. The
leakage occurs at a weakness in the wall of the vessel.
When the weak vessel wall
begins to bulge outwards, it forms an aneurysm. The aneurysm can then
burst at any time and nothing can be done to prevent this.
Mr Hennessy has been
campaigning to raise awareness of the condition since his wife Val
died suddenly from it in 1996 aged 54.
Now the Val Hennessy Trust is
a fully-registered charity with an office in Queen Victoria Road in
Coventry, and is hoping to appoint a specialist nurse to help people
get over the condition.
A bid has been submitted to
the lottery fund to pay for a nurse that could be the first referral
point in the region for people recovering from the condition, or their
If this proves successful, the
trust hopes to be able to cover the whole country, and provide uniform
information to people wanting help.
Mr Hennessy said:
”A lot of surgeons differ
in the way they treat it, but the person who has suffered from it is
going to have a clip or a coil inserted and they often worry that it
is going to give way.”
The trust already offers
counselling to local sufferers, to help them come to terms with the
difficulties they have faced since the haemorrhage.
The condition can affect
anybody. Some people find their movement is restricted while others
can lead a normal life.
But with little information
available in this country, the condition can lead to uncertainty for
sufferers and their families.
Trust administrator Gerard
trust hopes to hear if it has been successful with its bid by the end
of the month.
“We are looking at support
and offering advocacy to people who need it, and we want a
specialist nurse who will be able to give advice and help look after
“Even if we don’t get
the funding we will be looking other forms of funding to keep our